Defending consumer rights to affordable medication on the Internet (left to right: Gabriel Levitt, Jeremy Malcom, Andrew Goldman, Burcu Kilic, Paul Zickler)
Access to medicines and Internet rights advocates came together yesterday for a panel at the RightsCon conference in Brussels, Belgium, to discuss the importance of, and threats to, online access to safe and affordable medication. In my capacities as president of PharmacyChecker.com and founder of Prescription Justice, I submitted the concept for this panel to RightsCon, a conference that focuses on issues relating to human rights and the Internet, such as freedom of expression, curbing violent extremism, and privacy and data protection.
The panel included Jeremy Malcolm, Electronic Frontier Foundation; Andrew Goldman, Knowledge Ecology International; Burcu Kilic, Public Citizen; Paul Zickler, Canadian International Pharmacy Association, and Gabriel Levitt. We came together to push back against the pharmaceutical industry’s attempts to control what is and is not permissible on the Internet when it comes to medication sales and the importation of prescription drugs for personal use.
My presentation’s focus was on the tens of millions of Americans who are struggling to afford medication and how the Internet provides them with access to lower cost medication imported for personal use. I will follow-up with a more detailed report on the panel discussions and a workshop that followed, where we drafted a Statement of Principles for the online sale of medication, one inspired by the belief that access to affordable medications is an essential component to the fundamental human right to health.
Tagged with: brussels principles, CIPA, Electronic Frontier Foundation, Knowledge Ecology International, Public Citizen, Rightscon
Americans Can’t Afford It.
Last week, an article was published by Jeremy Malcolm, senior global policy analyst for the Electronic Frontier Foundation, under the appropriate title, “How Big Pharma’s Shadow Regulation Censors the Internet.” Basically, Jeremy explains that due to drug company money and political influence in the United States, there are activities going on both in plain view and behind the scenes that are meant to curtail and even end access by Americans to lower cost medications being sold on the Internet.
I’ve been writing about this – albeit in less Internet policy, theoretical terms – for years and testified before and warned Congress in 2013 on this issue. About a month ago, I published an article on Circle ID, a source of news and opinion about Internet policy and governance, describing the actions of drug companies to dominate the Internet. My hope was to reach people just like Jeremy Malcolm at organizations like the Electronic Frontier Foundation (EFF). EFF is a non-governmental organization, founded in 1990 to defend civil liberties in the digital world. They champion “user privacy, free expression, and innovation through impact litigation, policy analysis, grassroots activism, and technology development.” Read about its awesome work and history here. (more…)
Tagged with: Alliance for Safe Online Pharmacies, Center for Safe Internet Pharmacies, Electronic Frontier Foundation, jeremy malcolm, LegitScript, NABP, shadow regulation, voluntary agreements
Last Thursday, the Senate Judiciary Committee unanimously passed S. 968, Preventing Real Online Threats to Economic Creativity and Theft of Intellectual Property Act of 2011, also known as the Protect IP Act. Its passage represents a real threat to Americans’ access to safe and affordable medications online and we hope that as the bill makes its way through the legislative process it will be amended appropriately.
Essentially, the bill will make it easier to crackdown on rogue pharmacy sites selling fake meds and not requiring a prescription, which is great; however, it will also encourage actions to block Americans’ access to reputable and affordable non-U.S. online pharmacies that sell genuine medication and require a prescription, which are a lifeline for uninsured Americans. That’s because of Section 5, which includes in its definition of “infringing sites” online pharmacies that sell medications to Americans that are not manufactured in a facility approved by the FDA. (more…)
Tagged with: Americans, Australia, Canada, cloture, Demand Progress, Electronic Frontier Foundation, Eli Lily, European Union, fake meds, FDA, First Amendment, GlaxoSmithKline, Google, legislation, Merck, Online Pharmacies, Pfizer, S.968, Senate Judiciary Committee, Senator Wyden, The Protect Intellectual Property Act, UK, United States