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Electronic Frontier Foundation Calls Out Alliance for Safe Online Pharmacies, NABP, Center for Safe Internet Pharmacies, and LegitScript for Internet Censorship

Americans Can't Afford It.

Americans Can’t Afford It.

Last week, an article was published by Jeremy Malcolm, senior global policy analyst for the Electronic Frontier Foundation, under the appropriate title, “How Big Pharma’s Shadow Regulation Censors the Internet.” Basically, Jeremy explains that due to drug company money and political influence in the United States, there are activities going on both in plain view and behind the scenes that are meant to curtail and even end access by Americans to lower cost medications being sold on the Internet.

I’ve been writing about this – albeit in less Internet policy, theoretical terms –  for years and testified before and warned Congress in 2013 on this issue. About a month ago, I published an article on Circle ID, a source of news and opinion about Internet policy and governance, describing the actions of drug companies to dominate the Internet. My hope was to reach people just like Jeremy Malcolm at organizations like the Electronic Frontier Foundation (EFF). EFF is a non-governmental organization, founded in 1990 to defend civil liberties in the digital world. They champion “user privacy, free expression, and innovation through impact litigation, policy analysis, grassroots activism, and technology development.” Read about its awesome work and history here(more…)

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New Advocacy Effort to Get Clinton and Trump to Talk About Lower Cost Rx Imports

We The PeopleIf you would like the presidential debate this Sunday to cover the topic of personal drug importation, then vote here. It’s already known that both Clinton and Trump support expressly legalizing personal drug importation – but it would be better to hear them talk about it before tens of millions of people!

The Campaign for Personal Prescription Importation, PharmacyChecker.com, RxRights, Prescription Justice, and TodaysSeniorsNetwork came together in a joint effort to nudge the candidates to address the issue of importation during the debate. Our coalition is asking Americans to vote to include the following question in the debate: “What would you do to ensure access to affordable medications through importation?” We are also encouraging consumers to pipe up on social media and get their stories out there to Anderson Cooper and Martha Raddatz, the debate’s moderators.

For more information on this advocacy effort, see the news release.

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Forty-four Million Americans Find It’s Difficult to Afford Medication, According to New Kaiser Poll

What Americans think about drug prices...

What Americans think about drug prices…

A new poll by Kaiser Family Foundation found that 44 million Americans find it difficult to afford medication. Also, 77% of Americans believe drug prices are unreasonable, up from 72% last year. On the other hand, most Americans did not have trouble affording their medications. Of the 55% of Americans who take medication, 73% say they can afford them, 26% say that its’ difficult. (I’m not sure why that doesn’t round to 100%).

Overwhelming majorities of Americans support policies, legislative reforms in most cases, to bring down prescription drug prices and have access lower cost medications from Canada. The most popular policy would be forcing pharmaceutical companies to be transparent about their pricing of medication. The next two most favored policies are allowing Medicare to negotiate drug prices and expanding personal importation of lower cost medication from Canada.

The Kaiser Poll was a nationally representative random survey of 1204 adults living in the U.S. Public and voter opinions on drug prices are just one part of the survey, albeit the main one: but the poll also covers voter opinions and data about health insurance generally, Obamacare, premiums, and deductibles.

The Kaiser Poll has very interesting political analyses relating to how a person will vote in the upcoming presidential election and the candidates’ positions on prescription drug costs and other healthcare issues. If interested, the positions of Hillary Clinton and Donald Trump are summed up on the blog of Prescription Justice. Both Clinton and Trump support expanding access to lower cost imported medications through personal importation, but Clinton has a much more ambitious plan, which is very much congruous with public opinion among Democratic and Republican voters.

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Talking with the Internet Community about Online Pharmacies and Drug Affordability

To affordable medication!

To affordable medication!

It’s a well-known fact that the pharmaceutical industry has the greatest lobbying prowess of any industry in America. That power enables them to drive law and policy here at home – including the creation and maintenance of laws that make it technically illegal to import lower cost medications from Canada and other countries. Such is the nature of political power in the United States. But things are different in the virtual world.

Big pharma is trying to have that same sway over the Internet in order to stop people from buying lower cost medications online – and they are having successes. But the Internet community and the access to medicines activists can team up to defeat them. In an article I published on Circle ID this week, I identify for the Internet community what it means to protect online access to safe and affordable medication.

Essentially, I propose that rules applied to medicine sales on the Internet should reflect the highest aspirations of human rights law, which hold that access to affordable medications are a human right. Under this perspective, companies, such as registries, registrars, online payment processors, and others, that control “access” to the Internet, should do everything they can to make sure Internet users have the widest possible online access to purchase medication they can afford. Who wouldn’t want that?

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My Letter to the Editor of New York Times on Epipen and Personal Drug Importation

Talking to the New York Times!

Talking to the New York Times!

Last week the New York Times published my Letter to the Editor in response to an article about Mylan’s despicable increase of the life-saving drug Epipen, which saves people from serious allergic reactions. In “An Outcry Over the Price of Epipen,” my Letter’s focus is really on Congress and the need for them to actually do something besides talk.  I note that personal drug importation, which is already happening, should not just be tolerated as a technically illegal behavior for which patients are never prosecuted but encouraged using proper guidance so that people can afford the prescriptions they need.

The other Letters provide excellent contributions to the policy debate.  Caroline Poplin, who is a doctor, lawyer and healthcare analyst (wow!), criticizes drug companies for their abuse of our patent laws and federal regulations that allow them to maximize profits over patients. She believes that where the market is producing “bad results” government ought to provide remedies.

Sarah fink writes that due to the price of Epipen, her serious allergic reaction forced the plane she was on to land! Here we learn that airlines started cutting back on keeping Epipens on places due to the price. This was my favorite Letter.

Again, check it out here.

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The Next President Will Support Legalizing Personal Drug Importation…Really?

Want Lower Cost Medication

Want Lower Cost Medication

One week ago, the CEO and founder of PharmacyChecker.com, Tod Cooperman, and RxRights leader Lee Graczyk, published an op-ed in The Hill’s Congress Blog, entitled: “The candidates agree: Legalize personal imports of prescription drugs.”  In a nutshell, as the title makes clear, Hillary Clinton and Donald Trump both support making it expressly legal to import prescription medication for personal use. This issue is sometimes one of life and death as the media spotlight on Mylan’s drug price spike of Epipen last week makes clear. You might be thinking, “Well, no one gets busted for importing personal prescription orders now so what’s the big deal?” It’s a huge deal.

Currently, about four million Americans import medication for personal use due to cost. But there are more Americans who need to in order to get the medications prescribed to them. If it were technically legal, millions more Americans would buy lower cost medication from Canada and other countries. How many? (more…)

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